SISTAMOON FOUNDATION
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Devic's disease is an inflammatory disease of the central nervous system in which there are episodes of inflammation and damage to the protective covering of nerves that almost exclusively affect the optic nerves and spinal cord. It can cause temporary or permanent blindness in one or both eyes. It can also lead to varying degrees of weakness or paralysis in the legs or arms,as well as painful spasms, loss of sensation, and bladder or bowel dysfunction from spinal cord damage.
To date there does not seem to be real numbers with respect to how many People in the United States have or are diagnosed with Devic's Disease According to Orphanet, NMO/Devic's Disease has a worldwide distribution and estimated prevalence of 1-2/100,000.
http://www.orpha.net/consor/cgi-bin/index.php?lng=EN
It is very important to note that the onset of symptoms can be very rapid, Some people have reported that their symptoms happened over a course of a week and some within a matter of hours.
This foundation is necessary because this disease is so rare and under diagnosed as well as mis-diagnosed as Multiple Sclerosis (MS). Although there are many who are mis-diagnosed, 35 % of African Americans are Mis-diagnosed with MS when they really have Devic's Disease. According to the Walton Centre Medical Services in England, "80-90% of people with Neuromyelitis Optica, are women. (In fact most autoimmune disorders are common in women.)"
For a more detailed definition of what this disease is, please visit the Mayo Clinic Website at http://www.mayoclinic.org/devics-disease/
We hope this site can bring awareness and attention to this rare and under-diagnosed/mis-diagnosed disease to the attention of every Doctor and every Person in the United States and around the world.
The SistaMoon Foundation is not in partnership with any other organizations, associations with respect to fund raising, However, we do provide links to other support groups and informational web sites.
No one other than the Founder and CEO of the SistaMoon Foundation or her designated Representative can authorize fund raising events on behalf of the SistaMoon Foundation.
DISCLAIMER:
Please make sure to check with your Doctor, Neurologist before making any medical decision. Information obtained on this site is information found during the research of Devic's Disease.
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